Our Partners
in the Alpha
Community
|
Testing for AAT Deficiency
Simply click HERE
Alpha One International Registry
provides AAT Deficiency Testing. This AAT Deficiency Testing is a
COMPLETE ALPHA-1 TESTING SERVICE
and WITHOUT COST TO YOU.
Please read the detail at: AAT Deficiency Detection Center
|
Alpha-1 Advocacy Alliance
The Alpha-1 Advocacy Alliance formed to build an educational assistance program to meet these quickly expanding needs. We have a passion to serve the under-served populace, educating and empowering them to move in a direction that improves their lives. In addition, these same individuals have much to offer each other and through extended volunteers and compassion, we encourage growth through exchange.
The medical world has introduced the Alpha-1 patient to therapies to help improve the function ability of individuals. A1AA recognizes the need for patients to receive the best possible compassionate care in the administration of any medical needs. The personal needs of the Alpha 1 patient must never be forgotten and we at A1AA, are patient advocates who believe patients deserve choices. The choices can mean the difference between the emotional well-being and the physical draining of one's energy and health.
Our information network through Alpha-1 Advocacy Alliancewill offer high quality response, respected professionalism, accuracy and timely updates, all while reflecting our personal commitment to provide services at no charge. Our accessibility through telephone service, Internet access and mailings should prove to touch the lives of anyone who needs help. Future conventions that bring the corners of the world together provide an ultimate goal but are not often recommended or accessible for most patients.
If you would like to make a tax deductible donation to the Alpha-1 Advocacy Alliance, please mail your check or money order to:
Alpha-1 Advocacy Alliance
PO Box 202
Wolftown, VA 22748
Be sure to note if the donation is in the memory or in honor of someone so that we can also acknowledge your donation to the individual or family. If you would like your donation to be directly used for the educational scholarship fund, please let us know. Thank you in advance for supporting the work of the Alpha-1 Advocacy Alliance.
|
Alpha-1 Advocacy Alliance
Information and News!
"The Alpha-1 Advocacy Alliance 1AAT Grants"
The Alpha-1 Advocacy Alliance 1AAT Grants have been suspended temporarily as of June 15th until further funding becomes available.
If you would like to make a tax deductible donation to the Alpha-1 Advocacy Alliance, you may mail it to PO Box 202 Wolftown, VA 22748. Please watch this website for when the grants will again be available. If you have questions, you may call us at 866-367-2122.
|
"William H. Poplett Memorial Scholarship" The Alpha-1 Advocacy Alliance announce the availability of a new dedicated "William H. Poplett Memorial Scholarship" in honor of our Alphas lost. Many of our fellow Alphas have asked that donations be made to the A1AA in their honor at their passing. The "William H. PoplettMemorial Scholarship" will once again be awarded this August to any Alpha continuing their formal education beyond high school. The individual will submit an essay to the A1AA by a Word Document or by USPS mail by June 15th of the reward year. -- full text"
|
Medicare beneficiaries who enter the prescription drug Donut Hole (known as the "Donut Hole") anytime before the end 2010 should receive a one time $250 rebate check from Medicare. -- full text"
|
Omni Bio Pharmaceutical, Inc. today announced that the Barbara Davis Center for Childhood Diabetes has received IND regulatory clearance from the U.S. Food and Drug Administration (FDA) to initiate a Phase I/II clinical trial evaluating Alpha-1 Antitrypsin ("AAT") in Type I diabetics. -- full text"
|
Take Grifols SA: This developer of medical products has agreed to shell out $3.4 billion to acquire Talecris Biotherapeutics Holdings (TLCR). -- full text"
|
One is a sales aid, and one is a consumer brochure, but both ads --for CSL Behring's Zemaira and for Talecris' Prolastin -- are false ormisleading, FDA said in a pair of untitled letters. -- full text"
|
New Emerging Treatments A1AD: Treatments aimed at correcting the underlying genetic abnormality, supplementing or modifying the gene
product, and halting or reversing organ injury are now beginning to emerge. These innovative approaches may
prove effective at modifying or eliminating diseases association with AAT deficiency.
-- full text"
|
|
A group of doctors at the Puerta de Hierro hospital in Madrid have performed two groundbreaking lung transplants with a technique that involves the preservation, testing and treatment of the lungs outside the body. The practice, known as ex-vivo perfusion, uses a machine to preserve, control and treat the organs outside the body. -- full text"
|
|
Talecris Biotherapeutics, Inc. (Nasdaq: TLCR) announced today that it was granted orphan drug designation by the U.S. Food and Drug Administration (FDA) for the development of an aerosol formulation of Alpha1-Proteinase Inhibitor (Human, A1PI) to treat congenital alpha1-antitrypsin (AAT) deficiency. -- full text"
|
|
PIG lungs could be transplanted into humans following an Australian medical breakthrough bringing new hope to patients awaiting life-saving operations. -- full text"
|
|
Finding an Article using OJOSE. Online JOurnal Search Engine (OJOSE) is a free powerful scientific search engine enabling you to make search-queries in different databases by using only one search field. |
|
Belgian scientists who used embryonic stem cells to create lung tissue say this technique could provide an alternative to lung transplants for patients with chronic obstructive pulmonary disease and cystic fibrosis. -- full text"
|
|
Predicting pancreatic cancer survival. The levels of alpha1-antitrypsin and alpha1-antichymotrypsin were not mutually correlated. However, a statistical analysis revealed that each protein had a significant correlation with overall survival. Patients with high levels of alpha1-antitrypsin had shorter survival times than patients with low levels: -- full text"
|
|
Malnutrition is frequently present in case of end-stage liver diseases, and in cirrhotic patients, a poor nutritional status is considered to be one of the predictive factors for increased morbidity and mortality rates after surgery. -- full text"
|
|
The Alpha-1 Advocacy Alliance announce the availability of a new dedicated "Alpha-1 Advocacy Alliance Memorial Scholarship" in honor of our Alphas lost. Many of our fellow Alphas have asked that donations be made to the A1AA in their honor at their passing. The "Alpha-1 Advocacy Alliance Memorial Scholarship" will once again be awarded this August to any Alpha continuing their formal education beyond high school.“Scholarship -- full text"
|
"Remembering Ask Pat"
On Sunday December 27th, 2009, the Alpha-1 Advocacy Alliance community lost a very special member of our organization, Patricia Ann Slavin, also known as Ask Pat. Pat was a remarkable woman who participated in her Alpha-1 community right from the beginning. “Remembering Ask Pat -- full text"
|
|
Researchers at the University of North Carolina at Chapel Hill have discovered a genetic risk factor for severe liver disease in people with cystic fibrosis. Those who carry a particular variant of the SERPINA1 gene (also known as alpha-1-antitrypsin or alpha-1-antiprotease) are five times more likely to develop cirrhosis and other liver complications than patients who carry the normal version of the gene.
“Pressroom -- full text"
|
|
Art, Alpha-1-antitrypsin Polymorphisms and Intense Creative Energy:
Blessing or Curse? Strategies for the dissection of genetic-environmental interactions in neurodegenerative disorders. Neurotoxicology 2006;27:637-57].
Given association of art and mood disorders, we examined occupation and artistic vocation from this same series
“Pressroom -- full text"
|
|
Awareness of COPD—chronic obstructive pulmonary disease—continues to grow in the United States, according to national survey results released November 2, 2009 by the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health
“Pressroom -- full text"
|
|
Researchers at the University of Massachusetts (UM) Medical School and the University of Florida (UF) in Gainesville have safely given new, functional genes to Alpha-1, according to clinical trial findings in the online early edition of the Proceedings of the National Academy of Science.
“Pressroom -- full text"
|
|
The UnitedHealthcare Children's Foundation is offering support to meet the needs of children across the United States with assistance grants for medical services not fully covered by health insurance. Parents and caretakers across the country will be eligible to apply for grants of up to $5,000 for healthcare services that will help improve their children's health and quality of life. Personal Advocacy for full story
|
NIH LAUNCHES NEW WEB SITE
FOR PARENTS ON MEDICAL RESEARCH STUDIES FOR CHILDREN
Award-winning video clips feature children, parents discussing clinical studies
From asthma and cancer treatments to vaccines, research in children saves lives and improves their health and well-being. A new Web site from the
National Institutes of Health (NIH), "Children and Clinical Studies" < www.ChildrenAndClinicalStudies.nhlbi.nih.gov >, offers parents and health care providers an insider's guide to children's medical research. The Web site combines information about how clinical studies in youth are conducted with award-winning video of children, parents, and healthcare providers
discussing the rewards and challenges of participating in research. Full Text ...
|
Support Alpha-1 Advocacy Alliance
It’s simple! It’s easy! Online shopping is fun and now, it can help Alpha-1
Advocacy Alliance. Simply sign up at www.igive.com and list A1AA as your target charity. Each time you purchase from a participating store, that store will
donate up to 10%  in your name to the Alpha-1 Advocacy Alliance. And, now ,when you sign up, they are offering an extra $5.00 donation. So, sign up today and help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance.
|
Panniculitis...Alpha1 Antitrypsin Deficiency ... Nodular panniculitis refers to inflammatory nodules in the subcutaneous fat. Nodules may be, single or multiple, localized or generalized, and vary in size from a few millimeters to several centimeters in diameter. They are generally firm, red and tender... full story
|
|
A1AA Shoppe is now open online!
Check out the A1AA T-Shirts, iGive.com, Alphapotamus, renew and order new magazine subscriptions on line. Help raise money for the Alpha-1 Advocacy Alliance. Support the Alpha-1 Advocacy Alliance. Help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance!
|
...Alpha-1 Advocacy Alliance
“News Room”
|
|
The Phone Card Program to assist Alpha-1 Patients ( Personal Advocacy: “The Phone Card Program” ) The Alpha-1 Advocacy Alliance and Coram Healthcare are pleased to announce “Call Home on Us.” This new Personal Advocacy Program provides phone support for those needing a little bit of help when they are away from home. For complete details click on the link above. |
FOR INFO CALL: 540-948-6777 or
Toll Free 1-866-FOR-A1AA (1-866-367-2122)
Fax # 540-948-6763
Search our web site!
Insert your “key words,” then click the “Google Search” button.
Alpha-1 Advocacy Alliance
PO Box 202, 103 Rapidan Church Lane Wolftown, VA 22748
Copyright © 2009 Alpha-1 Advocacy Alliance, All Rights Reserved
Home | Disclaimer | Privacy Policy
| webmaster@alpha1advocacy.org
| 
“