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Simply click HERE provides AAT Deficiency Testing. This AAT Deficiency Testing is a COMPLETE ALPHA-1 TESTING SERVICE and WITHOUT COST TO YOU. Please read the detail at: AAT Deficiency Detection Center |
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The Alpha-1 Advocacy Alliance formed to build an educational assistance program to meet these quickly expanding needs. We have a passion to serve the under-served populace, educating and empowering them to move in a direction that improves their lives. In addition, these same individuals have much to offer each other and through extended volunteers and compassion, we encourage growth through exchange. The medical world has introduced the Alpha-1 patient to therapies to help improve the function ability of individuals. A1AA recognizes the need for patients to receive the best possible compassionate care in the administration of any medical needs. The personal needs of the Alpha 1 patient must never be forgotten and we at A1AA, are patient advocates who believe patients deserve choices. The choices can mean the difference between the emotional well-being and the physical draining of one's energy and health. Our information network through Alpha-1 Advocacy Alliancewill offer high quality response, respected professionalism, accuracy and timely updates, all while reflecting our personal commitment to provide services at no charge. Our accessibility through telephone service, Internet access and mailings should prove to touch the lives of anyone who needs help. Future conventions that bring the corners of the world together provide an ultimate goal but are not often recommended or accessible for most patients.
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Information and News!
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PPTA Statement: HIV Transmission Reported by CDC. The U.S. Centers for Disease Control (CDC) reported recently that a kidney transplant patient in Colorado contracted HIV from a blood transfusion in 2008, the first U.S. patient to do so in eight years.
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Omni Bio Pharmaceutical, Inc., today announced that the first patient has been infused in its FDA-cleared Phase I/II human clinical trial of Alpha-1 antitrypsin in recently diagnosed Type 1 diabetics. The Phase I/II clinical trial is evaluating the potential of AAT to halt or reduce the deterioration of islet beta cells that causes Type 1 diabetes. -- full text" |
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Applied Genetic Technologies Corporation, a privately-held, clinical stage biotechnology company developing novel systems to deliver human therapeutics, announces that it has received a grant of $1 million from the Food and Drug Administration (FDA Orphan Drugs Program) to fund a Phase II Human Clinical Trial. -- full text" |
| Finding an Article using OJOSE. Online JOurnal Search Engine (OJOSE) is a free powerful scientific search engine enabling you to make search-queries in different databases by using only one search field. |
 in your name to the Alpha-1 Advocacy Alliance. And, now ,when you sign up, they are offering an extra $5.00 donation. So, sign up today and help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance.
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"The Alpha-1 Advocacy Alliance 1AAT Grants"
The Alpha-1 Advocacy Alliance 1AAT Grants have been suspended temporarily as of June 15th until further funding becomes available.
If you would like to make a tax deductible donation to the Alpha-1 Advocacy Alliance, you may mail it to PO Box 202 Wolftown, VA 22748. Please watch this website for when the grants will again be available. If you have questions, you may call us at 866-367-2122. |
| New Emerging Treatments A1AD: Treatments aimed at correcting the underlying genetic abnormality, supplementing or modifying the gene product, and halting or reversing organ injury are now beginning to emerge. These innovative approaches may prove effective at modifying or eliminating diseases association with AAT deficiency. -- full text" |
| A group of doctors at the Puerta de Hierro hospital in Madrid have performed two groundbreaking lung transplants with a technique that involves the preservation, testing and treatment of the lungs outside the body. The practice, known as ex-vivo perfusion, uses a machine to preserve, control and treat the organs outside the body. -- full text" |
| Belgian scientists who used embryonic stem cells to create lung tissue say this technique could provide an alternative to lung transplants for patients with chronic obstructive pulmonary disease and cystic fibrosis. -- full text" |
| The Alpha-1 Advocacy Alliance announce the availability of a new dedicated "William H. Poplett Memorial Scholarship" in honor of our Alphas lost. Many of our fellow Alphas have asked that donations be made to the A1AA in their honor at their passing. The "William H. Poplett Memorial Scholarship" will once again be awarded this August to any Alpha continuing their formal education beyond high school.“Scholarship -- full text" |
| Researchers at the University of North Carolina at Chapel Hill have discovered a genetic risk factor for severe liver disease in people with cystic fibrosis. Those who carry a particular variant of the SERPINA1 gene (also known as alpha-1-antitrypsin or alpha-1-antiprotease) are five times more likely to develop cirrhosis and other liver complications than patients who carry the normal version of the gene. “Pressroom -- full text" |
| The UnitedHealthcare Children's Foundation is offering support to meet the needs of children across the United States with assistance grants for medical services not fully covered by health insurance. Parents and caretakers across the country will be eligible to apply for grants of up to $5,000 for healthcare services that will help improve their children's health and quality of life. Personal Advocacy for full story |
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NIH LAUNCHES NEW WEB SITE FOR PARENTS ON MEDICAL RESEARCH STUDIES FOR CHILDREN Award-winning video clips feature children, parents discussing clinical studies From asthma and cancer treatments to vaccines, research in children saves lives and improves their health and well-being. A new Web site from the National Institutes of Health (NIH), "Children and Clinical Studies" < www.ChildrenAndClinicalStudies.nhlbi.nih.gov >, offers parents and health care providers an insider's guide to children's medical research. The Web site combines information about how clinical studies in youth are conducted with award-winning video of children, parents, and healthcare providers discussing the rewards and challenges of participating in research. Full Text ... |
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Panniculitis...Alpha1 Antitrypsin Deficiency ... Nodular panniculitis refers to inflammatory nodules in the subcutaneous fat. Nodules may be, single or multiple, localized or generalized, and vary in size from a few millimeters to several centimeters in diameter. They are generally firm, red and tender... full story |
| A1AA Shoppe is now open online! Check out the A1AA T-Shirts, iGive.com, Alphapotamus, renew and order new magazine subscriptions on line. Help raise money for the Alpha-1 Advocacy Alliance. Support the Alpha-1 Advocacy Alliance. Help us help our fellow Alphas through the work of the Alpha-1 Advocacy Alliance! |
“| The Phone Card Program to assist Alpha-1 Patients ( Personal Advocacy: “The Phone Card Program” ) The Alpha-1 Advocacy Alliance and Coram Healthcare are pleased to announce “Call Home on Us.” This new Personal Advocacy Program provides phone support for those needing a little bit of help when they are away from home. For complete details click on the link above. |
Toll Free 1-866-FOR-A1AA (1-866-367-2122)
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PO Box 202, 103 Rapidan Church Lane Wolftown, VA 22748