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    Alpha-1 Advocacy Summary

    Won't you sign up for membership? Simply click HERE
    Joining is free, easy and private.

    to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1.

    Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU!
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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing .

    Please read the detail at: AAT Deficiency Detection Center
    Genetic Testing/Counseling


    Genetic Information and Patient Services, Inc.

    The following web site offers a look at genetic testing. This is a long, detailed article from Genetic Information and Patient Services, Inc. (GAPS). It does a nice job of explaining the genetics of testing DNA for many diseases that are inherited, not just Alpha 1.
    http://www.icomm.ca/geneinfo/genetests.htm


    University of Kansas

    The University of Kansas web site listed below lists a number of professional genetic counseling centers across the United States. In addition they offer access to Genetic Societies and a search engine to find a genetic counselor close to you.
    http://www.kumc.edu/gec/prof/genecntr.html


    University of Utah

    chart manThe University of Utah offers a web site that discusses genetic testing of newborns for Alpha-1. This article is a bit outdated with information regarding augmentation therapies available, but provides discussion about the various alleles, genetic counseling and life modifications in simple terms.
    http://gslc.genetics.utah.edu/units/newborn/infosheets/alpha.cfm



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