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Alpha-1 Registry or ACT
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Alpha-1 International Registry The Alpha 1 International Registry offers free confidential testing for Alpha-1. In addition, one may sign up for the registry. This registry is used for research into the disease, including sibling studies. Those who choose to participate in the AIR must first sign a comprehensive consent document. Dr. Edward Campbell is the principal investigator and will answer any questions you have regarding this confidential registry. The web site includes his contact information. http://www.aatregistry.org/usa.html ACT (Alpha 1 Coded Testing Trial) The Medical University of South Carolina offers coded testing through ACT (Alpha 1 Coded Testing Trial). Participants must fill out a pre and post test questionnaire. For more information, contact the registry coordinator at alphaone@musc.edu This is part of the Alpha One Foundation Research Program.
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