Home Mission Statement What is Alpha-1 Need Help Now ! Informational Resources Support Medicine Support Personal Advocacy Education Public Policy Alpha-1 Vets Health Tips FAQs Caregivers Membership Management Team Press Room Feedback and Comment Our Supporters and Links Alpha-1 Advocacy Summary Won't you sign up for membership? Simply click HERE Joining is free, easy and private. to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1. Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU! Testing for AAT Deficiency Simply click HERE Alpha One International Registry provides AAT Deficiency Testing. This AAT Deficiency Testing is a COMPLETE CONFIDENCIAL TESTING SERVICE and WITHOUT COST TO YOU. This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing . Please read the detail at: AAT Deficiency Detection Center

Education Education encompasses not only the basic education of the patient and the medical community, but also involves a constant review and update of current breakthroughs and the communication of that information back to patients. Providing an Internet web site with constantly updated links and up-to-the-minute data will be a prime focus in our education format. Alpha-1 Antitrypsin Deficiency What is Alpha-1 Antitrypsin Deficiency Genetics and Alpha-1 "A-Z" | National Institutes of Health Comprehensive Report on Alpha-1 Alpha-1 Antitrypsin Deficiency, by Paul Fairman, MD Alpha-1 International Registry and Alpha 1 Coded Testing Trial Understanding Blood Tests New Guidelines for Alpha-1 Antitrypsin Deficiency What do the Letters Mean M, F, Z, S... SEX and COPD- We ain't dead yet! How do people inherit alpha-1 antitrypsin deficiency? Impact of environmental factors on Alpha-1 Patients. Clinical Trial & Research Identification of Individuals with Alpha-1 Antitrypsin Deficiency by a Targeted Screening Program Clinical Trials and Sibling Study by AIR Current Clinical Study On-Going Alpha-1 Lung Research Genetic Modifiers of Alpha 1-Antitrypsin Deficiency Scientists combine experimental therapies to fight gene disorders. Liver Research: Ex vivo transduced liver progenitor cells Gene therapy for human alpha1-antitrypsin deficiency Aralast Phase I in New Zealand and Austalia Genetic Testing/Counseling Information: New test for detecting genetic defects in embryos Genetic Testing/Counseling Personal Testing - another option Stem Cells Research: Stem Cells Research: Why All the Excitement? Stem Cell Research: The Controversy. Stem Cell Research: The Good News! Transplant 101: Transplant 101 The UNOS web site Organ Facts and Figures: Finding a transplant center: Transplantation- Single vs Double? Medicines: Support Groups: Transplant Financial Planning Assistance Ever wonder about the first transplant? Pregnancy Post- Transplant? Organ Donation Donor Card! Download and Pass then on... Special Problems in Long-term Survivors of Lung Transplantation Web site has live donors for those who need organs. Alpha-1 Lung Disease Alpha-1 Lung Disease Augmentation Therapy for the Lung Patient Augmentation Therapy - Cost Effective? FDA: Blood Products Advisory Committee - Augmentation Therapy Lung Transplants Transplant Web Information Testing Guide PRIOR to Lung Transplant After the Lung Transplant Healthy Living - Post Transplant Medwatch Alert for Lung Transplant Recipients Skin Cancers that develop in Organ Transplant Recipients Additional pictures and information about basal cell carinomas New Study Results With Inhaled Cyclosporin Finding a Pulmonary Re-Hab Sites Lung Volume Reduction Surgery and NETT Trial Researchers identify genes associated with lung transplant rejection Your Lungs and what you may have forgotten. Alpha-1 Liver Disease Alpha-1 Liver Disease On-Going Alpha-1 Liver Research Medwatch Alert for Liver Transplant Recipients Report on CMV incidence post liver transplant Pediatric Liver Patients Possible Insight Into Liver Disease Relationship of Alpha 1 and Liver Disease in Older Patients Common Test for Liver Disease OPTN/UNOS Board Approves Policies to Benefit Children Needing Livers, Kidneys Analysis of Risk Factors for Tumor Recurrence After Liver Transplantation for Hepatocellular Carcinoma. Issues in Cirrhosis and Liver Transplantation Living Donor Liver Transplant at Mayo Clinic Less drug better for transplant survival Immune system can accept donor tissue Bone mass continues to increase in liver transplant patients, despite early loss. Study Finds Anti-inflammatory Drugs Increase Liver Damage Randomized Controlled Trial of Total Immunosuppression Withdrawal in Liver Transplant Recipients: Role of Ursodeoxycholic Acid Alpha-1 Panniculitis Alpha-1 and Panniculitis Abstract on Treatment of Panniculitis Associated A1AD Panniculitis ... Alpha-1 Antitrypsin Deficiency Finding an Article Medicines - Information Inhalers - Bronchodilators...What are they? Medicines- What are they for? Are there any contradictions? Side effects? New Warnings on Anti-depressants Medicines - Resources (Go To "Support" -- Informational Resources) Recalls of Medicines: Important Inhaler RECALLS **** MedWatch Safety and Adverse Event Report : Modification List FDA Weekly Recalls Need Help Now! Click Here Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748 Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763 Copyright © 2006 Alpha-1 Advocacy Alliance, All Rights Reserved Home | Disclaimer | Privacy Policy