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Alpha-1 Advocacy Summary
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Won't you sign up for membership?
Simply click HERE
Joining is free, easy and private.
to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1.
Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU!
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Testing for AAT Deficiency
Simply click HERE
Alpha One International Registry
provides AAT Deficiency Testing. This AAT Deficiency Testing is a
COMPLETE CONFIDENCIAL TESTING SERVICE
and WITHOUT COST TO YOU.
This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing .
Please read the detail at: AAT Deficiency Detection Center |
Personal Advocacy
Personal Advocacy
for the patient may be as simple as linking a patient with an informed pulmonologist, GI or dermatologist within their area or may be as complex as lobbying congressional help for an individual. Patients often need the direction to turn to find proper treatment, patient financial assistance, and information regarding disability, community resources, insurance portability and the protection of their personal rights. We will extend our help as deeply as needed.
"Governemt Bills That Affect You "
"1 Alpha At a Time"
The Alpha-1 Advocacy Alliance announces the launch of a new patient assistance programs called 1AAT or1 Alpha At a Time.
"The American Thoracic Society (ATS)"
The ATS is interested in helping patients with their lung disease outside of the health care provider's office.
ATS are offering a toll free number for the current lung patient survey. Please read "ATS's" letter of information.
First Annual Alpha-1 Advocacy Alliance Show & Shine
Bill Poplett, put together our very First Annual Alpha-1 Advocacy Alliance Show & Shine and celebrating Organ and Tissue Donor Sabbath.
Second Annual Alpha-1 Advocacy Alliance Show & Shine
A1AA Car Show and Shine - Sept 9 2006
Fall is here and so is our Second Annual Alpha-1 Advocacy Alliance Car Show and Shine. It's a fundraising event for the Alpha-1 Advocacy Alliance.
Coram and A1AA ..."The Phone Card Program"
"The Phone Card Program..."
"Our Bundle of Joy !! "
Alphapotamus - "Loveable, Huggable and Wearing only his special shirt"
For an Alpha child who is hospitalized for any reason.
Durable Medical Equipment (DME)
DME: Pulse Oximeters, Nebulizers, and "The Vest"
DME: Portable Oxygen - The Who, What, Where and Why
DME: Stools - A variety of options
DME: Oxyview - Eyeglass Frames with Oxygen Tubing Built-In
National Patient Air Travel Program
National Association of Hospital Hospitality Houses
Traveling for Care
Travel Information
Travel - Airlines, Cruise Ships, Trains, Buses
Travel Tips - Oxygen Supplies, Wheelchair, and Disabled Traveler
Personal Oxygen Concentrator (POC)...Travel Usage
U.S. Department of Transportation
Toll Free Hotline for Air Travel...
Need Help Now ! (Click Here)
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Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
Telephone: 540-948-6777 or 1-866-FOR-A1AA (1-866-367-2122)
Fax # 540-948-6763
Copyright © 2006 Alpha-1 Advocacy Alliance, All Rights Reserved
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