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    Alpha-1 Advocacy Summary

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    to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1.

    Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU!
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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing .

    Please read the detail at: AAT Deficiency Detection Center
    Public Policy

    Public Policy is a major concern of this patient community as we move into the world of genetic alterations, privacy and insurance issues. Patients must have the assurance that their individualism is respected and that they are never denied all medical services needed for their situation. Services through careful watchdog relationships with federal, state and local governments will assure patients full access for medical services. Positive involvement will ensure our patients are given equitable service in research and medical advances and care.



    Proposed Changes to Augmentation Therapy -- Medicare
  • NORD ALERT: Changes of Medicare payment for augmentation therapy.
  • Aventis Behring: Medicare proposals affecting Alpha-1 Therapies.

    Denying equal access to augmentation therapies.
  • Medical insurers are denying equal access based solely on price.

    Genetic Information Nondiscrimination Act [S. 1053]
  • Genetic Discrimination Alert


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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

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