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“Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients,
educating healthcare professionals and advancing public policy for the Alpha-1 Community.”

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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    Please read the detail at: AAT Deficiency Detection Center
    Public Policy

    Public Policy is a major concern of this patient community as we move into the world of genetic alterations, privacy and insurance issues. Patients must have the assurance that their individualism is respected and that they are never denied all medical services needed for their situation. Services through careful watchdog relationships with federal, state and local governments will assure patients full access for medical services. Positive involvement will ensure our patients are given equitable service in research and medical advances and care.

    New Rules for Medicare Oxygen Payment Take Effect

    Starting January; new rules for Medicare oxygen payment took effect. Under previous law, Medicare paid oxygen suppliers a monthly rental fee for the duration of beneficiary use of home oxygen equipment. Now Medicare reimbursements are limited to the first 36 months of rental payment. During this initial time period, Medicare beneficiaries will be responsible for a 20 percent co-pay. Full Text ...

    Proposed Changes to Augmentation Therapy -- Medicare
  • NORD ALERT: Changes of Medicare payment for augmentation therapy.
  • Aventis Behring: Medicare proposals affecting Alpha-1 Therapies.

    Denying equal access to augmentation therapies.
  • Medical insurers are denying equal access based solely on price.

    Genetic Information Nondiscrimination Act [S. 1053]
  • Genetic Discrimination Alert


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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763
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