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Joining is free, easy and private. to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1. Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU! |
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Simply click HERE provides AAT Deficiency Testing. This AAT Deficiency Testing is a COMPLETE CONFIDENCIAL TESTING SERVICE and WITHOUT COST TO YOU. This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing . Please read the detail at: AAT Deficiency Detection Center |
Support is often the first thing newly diagnosed patients must empower themselves with. This connection with others who have experienced this life changing adjustment is one of both emotional and technical importance in the success of the patient. As an individual, they need personal mentoring, group support through fellow patients and Internet relationships, as well as factual knowledge to face the challenges, which may lie ahead. Specialized assistance as the patient's condition and situation adjust to illness, life-style changes and physical adjustments, approach to transplant and medicinal treatments available through therapeutics and clinical trials, family issues and the especially difficult area of illness in children are main areas of focus for this support system.
Online "Group Therapy" for the Alpha-1 Patient and Families
“The Organ Matching Process” "Educational Scholarship Grant "
| "Educational Scholarship Grant " The Alpha-1 Advocacy Alliance announce the availability of a new dedicated scholarship in honor of our Alphas lost. This bequest is now further recognized by going directly into the Alpha Memorial Educational Award. The Alpha-1 Advocacy Alliance will offer at least one $500.00 grant each year for secondary educations (college or graduate studies) to an Alpha-1 individual who fulfills the requirements of the grant. |
Coram and A1AA ..."The Phone Card Program"
"Our Bundle of Joy !! "
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For an Alpha child who is hospitalized for any reason.
Support Information:
Directives, Living Wills, Power of Attorney
Advance Directives, Living Wills, Power of Attorney….What's it all Mean?
Medicare - Medicaid
Help with Medicaid Benefits? (Kaiser Family Foundation)Medicines - Resources
Your Medical Information List
P S I, Inc.
"P S I, Inc. -- Medicine Assistance with Transplant Anti-rejection drugs"
Merck & Company , Inc.
Patient Assistance for Zetia (cholesterol lowering drug)
FosamaxMerck's patient assistance program covers this. The income guidelines are actually higher than listed at this web site so be sure and call if you have questions, download the form and send it on to your doctor for verification. Call us if you need help.
http://www.needymeds.com/programs/merck.html
Pfizer : offers a plan for seniors and Medicare beneficiaries that discounts all of their drugs to $15.00 per prescription, 30 day supply. You can apply by calling or email.
800-717-6005 or www.pfizerforliving.com/sharecard
Lilly : Seniors and disabled people on Medicare with individual income under $18,000 and no other drug coverage may get help from Eli Lilly. If you qualify for the LillyAnswers card, you'll pay $12.00 for a 30 day supply of SELECT Lilly medicines. Contact them at 877-795-4559 (877-RX LILLY) or www.lillyanswers.com
A list of covered meds follows:
These Lilly drugs are included in the LillyAnswers program:1,2
All programs are subject to change at any time.
Glaxo Smith Kline : offers a discount card called the Orange Card. This is open to singles with incomes less than $26,000 and $35,000 for couples, and of course on Medicare and no prescription coverage. Contact them at 888-672-6436.
Novartis : has a similar program on their meds. Their income limits are $28,000 for singles and $38,000 for couples. Those with incomes less than $18,000 pay an annual fee of $12.00 while those with higher incomes receive discounts that vary. Contact them at 866-974-2273 or www.novartis.com/downloads/carecard/care_applic.pdf
L king for More Information...
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Telephone: 540-948-6777 or 1-866-FOR-A1AA (1-866-367-2122) Fax # 540-948-6763
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