Alpha-1 Advocacy Alliance - Ongoing Alpha-1 Lung Research

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Testing for AAT Deficiency
Simply click HERE Alpha One International Registry
provides AAT Deficiency Testing. This AAT Deficiency Testing is a
COMPLETE CONFIDENCIAL TESTING SERVICE
and WITHOUT COST TO YOU.
This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing .

Please read the detail at: AAT Deficiency Detection Center

On-Going Alpha-1 Lung Research

Research Follow-up
on Newborn Screening in Sweden

This follow up report on newborn screening offers parents some firm supporting evidence to emphasize the importance of not smoking to their Alpha effected children (or any child). The original screening took place from 1972-1974 and involved 129 Alpha deficient children. This report comes from Thorax.
http://thorax.bmjjournals.com/cgi/content/full/57/8/705

American Lung Association

The American Lung Association offers information about Alpha-1 emphysema on their web site. In addition, one can find out about their activities to prevent teen smoking, limiting environmental pollution, services to the community through smoking cessation, occupational hazards to the breathing-challenged individual and life style changes that promote healthier living with lung disease.
http://www.lungusa.org/diseases/luna1ad.html

Clinical Research Centers

The following link will take you to US clinical research centers who are specializing in gastroenterology and/or the study of Alpha 1 Antitrypsin Deficiency. They may not be currently conducting research on Alpha-1, but are listed as centers who have listed themselves as conducting studies on it. Each center provides a list of studies they are/have been active. Browse through those centers near you and find one that may be on-going in your neck of the woods.
http://www.centerwatch.com/professional/procat5.html

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