educating healthcare professionals and advancing public policy for the Alpha-1 Community.” 
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in the Alpha Community  |
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Simply click HERE provides AAT Deficiency Testing. This AAT Deficiency Testing is a COMPLETE CONFIDENCIAL TESTING SERVICE and WITHOUT COST TO YOU. Please read the detail at: AAT Deficiency Detection Center |
if you find a dead link please email.
Webmaster@alpha1advocacy.org
A Special Thank-you to these Companies for their support!Click on there logo for their home pages.
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Alpha-1 Organization and SupportGenetic Alliance Organization Alpha-1 Spanish Homepage Pagina en Espanol sobre DA1A/A1AD Alpha-1 Support UK Alpha-1 Canada Alpha-1 Swedish Homepage/ALFA1 SVERIGE Alpha-1 Info -- Neatherlands Alpha-1 Info Austrailian Support Australian residents or those with a specific interest in AATD issues in Australia. Alpha-1 Info New Zealand Support Support and advocacy for individuals and families with Alpha-1 deficiency lung and liver conditions Spiderspun The U.S. Center for the Alpha One International Registry Alpha-1 Association Alpha-1 Kids Organization and Support | |||||||||
Alpha-1 Lung SupportLung transplant chat, patient stories, more American Lung Association Emphysema Foundation For Our Right To Survive (EFFORTS) www.necacommunity.org NECA, a COPD Group that offers free membership to patients with COPD, emphysema. They have some enlightening meetings around the country and offer a newsletter. This is a member driven organization. Chronic PulmonaryDisease | |||||||||
Alpha-1 Liver SupportAmerican Association for Study of Liver Diseaes Children's Liver Association for Support Services (C.L.A.S.S.) - "dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and liver transplantation." Lab tests of Liver Diseases Liver and Biliary Disease | |||||||||
Personal Alpha-1 Advocacy and Supporthttp://www.alpha2alpha.net http://www.alpha1advocacy.org "Advocacy for ALL individuals and families with Alpha-1 Deficiency." | |||||||||
Personal and Special Needs Resources | |||||||||
Medical Research, Journals, and HospitalsAlpha-1 by the Doctor's Doctor Alpha-1 Reports Page Alpha-1 Medline Plus Health Information American Medical Association National Jewish Medical and Research LifeNet Mayo National Institutes of Health National Organization for Rare Disorders, Inc.(NORD) The Food and Drug Administration The Internet Drug Index National Patient Safety Foundation National Health Council The National Health Council provides a voice for the millions of people with chronic diseases and disabilities and their family caregivers. | |||||||||
Transplants - Organ DonationsOrgan Procurement and Transplant Network Transplant Recipient's International Org. Inc.- TRIO - Transplantation and organ donation information and resources for transplant candidates, recipients, donors and their families. Well Spouses Foundation - "...provides emotional support and information to the husbands, wives and partners of the chronically ill and/or disabled." With message board, chat, newsletter, etc. | |||||||||
CareGivers - Kids with chronic illness- For kids and teens coping with chronic illness Caregiver Support and Wellness - For "all caregivers and loved ones of those who are chronically ill." Caregiver Survival Resources - Message boards for patient and caregivers, "Ask Dr. Caregiver," excellent links to caregiver resources. National Respite Network - All about respite care for families caring for the disabled and chronically ill. | |||||||||
Patient assistance programs for prescriptionshttp://www.needymeds.com http://www.themedicineprogram.com http://www.TogetherRxAccess.com |
Telephone: 540-948-6777 or 1-866-FOR-A1AA (1-866-367-2122) Fax # 540-948-6763
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