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    Alpha-1 Advocacy Summary

    Won't you sign up for membership? Simply click HERE
    Joining is free, easy and private.

    to sign up and become a member of our growing community of committed individuals striving to be well informed and educated about Alpha 1.

    Read our Privacy Policy and be assured we are here to help. Let us know what we can do for YOU!
    Baxter
    Talecris
    Aventis
    Accredo Therapeutics
    Coram
    Caring Voice Coalition
    Alpha2alpha
    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    This testing will include measuring the CONCENTRATION of AAT in your blood, determining the TYPE of ATT in your blood and (where appropriate) determining your AAT genotype by testing the DNA in your blood; State of the art, full-spectrum Alpha-1 Testing .

    Please read the detail at: AAT Deficiency Detection Center
    Supporters & Links
    Do you have a link or group you beleive that should be listed or
    if you find a dead link please email.
    Webmaster@alpha1advocacy.org



    A Special Thank-you to these Companies for their support!


    Click on there logo for their home pages.

    Baxter Talecris Aventis
    Accredo Therapeutics Coram Advanced Aeromedical Logo
    Caring Voice Coalition Alpha2alpha

    Alpha-1 Organization and Support

    Alpha-1 Advocacy Alliance
    Genetic Alliance Organization
    Alpha-1 Spanish Homepage
    Pagina en Espanol sobre DA1A/A1AD
    Alpha-1 Support UK
    Alpha-1 Canada
    Alpha-1  Swedish Homepage/ALFA1 SVERIGE
    Alpha-1 Info -- Neatherlands
    Alpha-1 Info Austrailian Support
    Australian residents or those with a
    specific interest in AATD issues in Australia.
    Alpha-1 Info New Zealand Support
    Support and advocacy for individuals and families
    with Alpha-1 deficiency lung and liver conditions
    Spiderspun
    The U.S. Center for the Alpha One International Registry

    Additional Supporter of Alpha-1 Patients

    Alpha1Association
    Alpha 1 Foundation

    Alpha-1 Lung Support

    Second Wind Lung Transplant Association
    Lung transplant chat, patient stories, more
    American Lung Association
    Emphysema Foundation For Our Right To Survive (EFFORTS)
    www.necacommunity.org NECA, a COPD Group that offers free membership to patients with COPD, emphysema. They have some enlightening meetings around the country and offer a newsletter. This is a member driven organization.
    Chronic PulmonaryDisease

    Alpha-1 Liver Support

    American Liver Foundation
    American Association for Study of Liver Diseaes
    Children's Liver Association for Support Services (C.L.A.S.S.) - "dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and liver transplantation."
    Lab tests of Liver Diseases
    Liver and Biliary Disease

    Personal Alpha-1 Advocacy and Support

    Caring Voice Coalition
    http://www.alpha2alpha.net
    http://www.alpha1advocacy.org "Advocacy for ALL individuals and families with Alpha-1 Deficiency."

    Medical Research, Journals, and Hospitals

    The Journal of the American Medical Association
    Alpha-1 by the Doctor's Doctor
    Alpha-1 Reports Page
    Alpha-1 Medline Plus Health Information
    American Medical Association  
    National Jewish Medical and Research
    LifeNet
    Mayo
    National Institutes of Health
    National Organization for Rare Disorders, Inc.(NORD)
    The Food and Drug Administration
    The Internet Drug Index
    National Patient Safety Foundation

    Transplants - Organ Donations

    United Network for Organ Sharing (UNOS)
    Organ Procurement and Transplant Network
    Transplant Recipient's International Org. Inc.- TRIO - Transplantation and organ donation information and resources for transplant candidates, recipients, donors and their families.
    Well Spouses Foundation - "...provides emotional support and information to the husbands, wives and partners of the chronically ill and/or disabled." With message board, chat, newsletter, etc.

    CareGivers - Kids with chronic illness

    Band-aids and Blackboards
    - For kids and teens coping with chronic illness
    Caregiver Support and Wellness - For "all caregivers
    and loved ones of those who are chronically ill."
    Caregiver Survival Resources - Message boards for patient and caregivers, "Ask Dr. Caregiver," excellent links to caregiver resources.
    National Respite Network - All about respite care for families caring for the disabled and chronically ill.

    Patient assistance programs for prescriptions

    http://www.helpingpatients.org
    http://www.needymeds.com
    http://www.themedicineprogram.com
    http://www.TogetherRxAccess.com


    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

    Copyright © 2006 Alpha-1 Advocacy Alliance, All Rights Reserved

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