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“Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients,
educating healthcare professionals and advancing public policy for the Alpha-1 Community.”

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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    Please read the detail at: AAT Deficiency Detection Center
    Going on Disability ?


    A.C.C.E.S.S.
    Your doctor has told you that it is time to stop working and go on disability. What do you do now? Your first step will be to contact A.C.C.E.S.S. These professionals will become one of your best friends as you go through the application process. ACCESS is a non-profit, totally free service for people with chronic diseases. They will help you apply and get your disability claim submitted. Should there be any problems along the way, they will be right there with you. Call the toll-free number @ 1-888-700-7010 weekdays 9:00 AM to 4:00 PM Eastern or

    ACCESS Program
    4710 Eisenhower Blvd. Suite E-3
    Tampa, Florida 33634



    Are you a Vet and going on disability?
    Because the military veterans program is very different, you will want to get in contact with us before you begin that process. Please email us so that we can help connect you to the right military veterans programs. alpha1advocacyalliance@yahoo.com


    What Does Social Security Disability Offer?
    • Monthly checks for you and your dependants
    • Medicare Coverage for the disabled individual
    • Training for an alternative career
    • Some home health equipment
    The Web address for Social Security is www.ssa.gov. This will take you to their comprehensive web site where you can read about many of the programs available through social security. You can even apply on line for benefits, but we recommend that you contact "ACCESS Program" FIRST and discuss your situation with them before you begin the application process.


    Medicare- What is Medicare?

    Medicare is a federal program that people pay into as they work. Their employers generally match the amount that is contributed. These funds are then held until a person retires or is disabled and paid back in monthly benefit checks. These funds can also be drawn on by dependent spouses and children if they become disabled and in some instances, widowed. Eligibility is determined by the length of time (called quarters) that someone works.

    As an example only: John and Mary are married with two children. John has worked all his adult life and become disabled. His disability benefit (the amount of his check) will be determined by his best contributing years. He will then receive a check for himself and for his two children, providing they are under 18 years old or until they complete high school. Benefits discontinue for the children once they graduate from high school. So, if their son turns 18 in March and graduates in June, benefits will continue through June. If the son drops out of school, benefits will discontinue when he turns 18 in March.

    Once approved for disability, Medicare has a five month waiting period before benefits are paid to the beneficiary. Should you be denied benefits initially and you appeal and then are approved, back payments will be paid from the first time you applied for benefits, minus the waiting period.

    Medicaid: What is it?

    Medicaid is a state run program that varies from state to state. Benefits vary and are determined by each state. Go to your state website to find out more about the requirements for eligibility.
    www.cms.hhs.gov/medicaid

    Go to this web site and type in your state name and read about the income levels and eligibility requirements. Individuals may qualify for Medicare and Medicaid benefits depending on their assets and expenses related to their illness.


    State Assistance Programs: What are they?

    Each state has assistance programs that may also be able to assist the individual and their family. Once again, the benefits vary from state to state. We recommend that you go to www.google.com and type in your state name and assistance in the search box. This will bring up the web sites that may direct you to other programs that could assist you with help with heating and cooling bills, food stamps, job searches, insurance, and short and long term assistance.

    Need Help Now ! (Click Here)

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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

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