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“Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients,
educating healthcare professionals and advancing public policy for the Alpha-1 Community.”

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    Testing for AAT Deficiency
    Simply click HERE
    Alpha One International Registry
    provides AAT Deficiency Testing. This AAT Deficiency Testing is a
    COMPLETE CONFIDENCIAL TESTING SERVICE
    and WITHOUT COST TO YOU.
    Please read the detail at: AAT Deficiency Detection Center
    TRANSPLANT 101


    Do you have a question about transplants?

    Of course you do!


    The UNOS web site has always been great for information on transplant statistics and can be found at http://www.unos.org Now, they have launched an even more comprehensive internal site to cover every topic about transplant from financing to medicines. The main site is http://www.transplantliving.org

    For some specific pages, click on the links below.

    Organ Facts and Figures: What centers transplant which organs, success rates, compare programs and policies at different centers. More specifics on how each organ works, survival of that organ and waiting times.
    http://www.transplantliving.org/OrganFacts/default.aspx


    Finding a transplant center: What centers are in your vicinity, within your optimum driving time, who does what kind of transplant.
    http://www.transplantliving.org/Community/
    members/membersDirectory.aspx



    Transplantation- Single vs Double? Should you receive a single or a double lung (bi-lateral) transplant? Your doctor and transplant team will decide this, but you should read the following article in preparation for this discussion. Print it out and take it with you. It's your life.
    http://ats.ctsnetjournals.org/cgi/content/full/74/5/1663


    Medicines: A comprehensive guide to the medicines that transplant recipients may face in the days and years after transplant. Find out the side effects, complications, positive reactions, changes on the horizon.
    http://www.transplantliving.org/afterthetransplant/
    protectingYourTransplant.aspx



    Support Groups: Find a support group in your area that fits your needs. These meetings are very helpful for the patient and caregivers alike.
    http://www.transplantliving.org/community/calendar/eventFind.aspx


    Transplant Financial Planning Assistance http://www.transplants.org/


    Ever wonder about the first transplant? This website from National Public Radio chronicles the first ever transplant performed.
    http://www.npr.org/templates/story/story.php?storyId=4233669



    Calculating LUNG Transplant Wait Times

    Webmaster's note: UNOS has temporarily stopped this calculator. The Calculator is expected to return soon. Please check back later.

    The following website allows you to calculate how long you will wait for a transplant based on the new lung allocation system.

    http://www.ustransplant.org/las/version-207.php

    Lking for More Information... Need Help Now! Click Here

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    Alpha-1 Advocacy Alliance, PO Box 202, 103 Rapidan Church Lane, Wolftown, VA 22748
    Telephone: 540-948-6777 or 1-866-FOR-A1AA   (1-866-367-2122) Fax # 540-948-6763

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